Even when institutionalized, participation in their own care is important. įor most older people, autonomy is important for good quality of life as well as being able to live independently in their own homes unless limited by very poor health. Autonomy is a challenging issue in dementia care that needs to be understood in the context of caring for dependent persons. In medical ethics respect for autonomy is considered a fundamental principle. Autonomy is also identified with the qualities of intentional actions and being free from controlling influences. In Western culture, autonomy has a range of different meanings such as “… self-rule, self-determination, freedom of will, dignity, integrity, individuality, independence, responsibility and self- knowledge” (, p. The final interpretation was based on perspectives from the theoretical framework. By means of deductive analysis, autonomy-related ethical dilemmas were identified. Field notes were written after participant observation of interactions between persons with dementia and professional caregivers during morning care or activities at a day care centre. The family carers and professional caregivers registered in the patients’ records were included in the study.Īn interview guide was used in interviews with family carers and professional caregivers. dementia of moderate degree (4) able to communicate verbally and (5) expressed a wish to live at home. Inclusion criteria for the persons with dementia were: (1) 67 years or older (2) diagnosed with dementia (3) Clinical Dementia Rating score 2 i.e. Each case consisted of of a triad: the person with dementia, the family carer and the professional caregiver. This Norwegian study had a qualitative, hermeneutic design and was based on nine cases.
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